BLOOD DISORDERS

Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. Symptoms include extended bleeding after injury, surgery, trauma, or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. The body produces 13 clotting factors. If any of them are defective or deficient, blood clotting is affected; a mild, moderate or severe bleeding disorder can result. (National Hemophilia Foundation)

 

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HEMOPHILIA
SICKLE CELL
SICKLE CELL IN THE SCHOOL SETTING
VON WILLEBRAND DISEASE           
OTHER FACTOR DEFICIENCIES

 

Basics of Bleeding Disorders
Child Care and School
Field Trips and Extracurricular Activities
School (16-25 Years)
Back-to-School Basics
Our Children’s Books (Hemophilia) — various free books
Back-to-School Tips for Parents
Transitioning to Adulthood

 

Back to School
 
 
HFA:   Students with Bleeding Disorders
 
 
HFA:  My Bleeding Disorder
 
 
HFA:  Sample Section 504 Accommodation Plan
 
 
Reasonable Accommodations
 
 
The School Tool Kit for People with Bleeding Disorders
 
 
R.I.C.E.

 

HEMOPHILIA

National Hemophilia Foundation
KidsHealth: Hemophilia
CDC: Basic Concepts of Hemophilia
Going to School With Hemophilia
HFA:  K-5 Powerpoint
HFA:  6-12 Powerpoint
HFA:  College Checklist
Hemophilia Myths & Facts
 
 
Hemophilia and School:  Developing an IHP

 

 

Sickle cell disease is a group of inherited red blood cell disorders that affects hemoglobin, the protein that carries oxygen through the body. Normally, red blood cells are disc-shaped and flexible to move easily through the blood vessels.  For the person with sickle cell disease, the red blood cells are crescent or “sickle” shaped. These cells do not bend and move easily and can block blood flow to the rest of the body.

The blocked blood flow through the body can lead to serious problems, including stroke, eye problems, infections and episodes of pain, called pain crises.   (NIH)

 

SICKLE CELL

NIH: What is Sickle Cell Disease?
CDC: Sickle Cell Trait Resources
SickleCellDisease.org: What is Sickle Cell Disease
SickleCellDisease.org: What is Sickle Cell Trait
TeensHealth: Sickle Cell Disease
KidsHealth: Sickle Cell Disease
MedlinePlus.gov: Sickle Cell Disease
NCAA: Sickle Cell Trait

 

 
Sickle Cell Trait
 
 
 
Sickle Cell Anemia

 

 

Sickle Cell Disease VideoSickle Cell Disease

 

SICKLE CELL IN THE SCHOOL SETTING

KidsHealth: 504 Plans
 
 
Sickle Cell:  School Nurse Presentation

 

Tipsheet:  Supporting Students with Sickle Cell Disease

 

 

Sickle Cell:  Educators Guide

 

 

Sickle Cell:  A Resource for the School Nurse and Educator

 

 

School Handbook:  The Sickle Cell Child
 
 
Sickle Cell School Modifications

 

 


Sickle Cell Disease:  Keys for Staying in School

 

 

 

Sickle Cell Trait and the Student-Athlete Video

 

Sickle Cell Trait and the School Athlete – II

 

 

Sickle Cell Trait and Athletes

 

Sickle Cell Trait:  A Fact Sheet for Student Athletes

 

 

Sickle Cell Trait:  A Fact Sheet for Coaches

 

 

VON WILLEBRAND DISEASE

In Brief: Your Guide to von Willebrand Disease
KidsHealth.org: von Willebrand Disease
All About Bleeding: von Willebrand Disease
von Willebrand Disease

 

OTHER FACTOR DEFICIENCIES

Hemophilia.org: Other Factor Deficiencies
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