MARFAN SYNDROME IHP Student's Name * First Middle Last Suffix This field is required. Please complete the following fields: First,Last. PhotoAccepted file types: jpg, gif, png, jpeg, Max. file size: 100 MB.DoB Month Incorrect Value for Month field Day Incorrect Value for Month field Year Incorrect Value for Month field Please enter a valid date. GR/LevelDaycareEEPKKN010203040506070809101112Post-GraduateWould you like to add the student's ID number? Yes No ID Campus/Building Would you like to add the student's homeroom number and teacher's name? 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Yes No ContactContact Name Add RemoveRelationship Add RemoveContact Phone Number Add RemoveContact Phone Type Add RemoveContact Phone Number Add RemoveContact Phone Type Add RemoveContact Name RelationshipChoose one:ParentGuardianOtherContact Phone Number Contact Phone TypeChoose OneHomeMobileWorkFaxContact Phone Number Contact Phone TypeChoose OneHomeMobileWorkFax Add More Treating Physician Add RemovePhysician Phone Number Add RemovePhysician Fax Number Add RemoveTreating Physician Physician Phone Number Physician Fax Number Add More Preferred Hospital City MEDICAL DIAGNOSIS(ES)Add a medication or procedure? Yes No MEDICATIONS/PROCEDURES Medication/Procedure Strength Dose ModeChoose one:OralTopicalInhaledIntranasalSQNebulizerSublingualRectalIMIVSched/PRN?Choose OneScheduledPRNTime Frequency If PRN, administer for Medication/Procedure Add RemoveStrength Add RemoveDose Add RemoveMode Add RemoveSched/PRN? Add RemoveTime Add RemoveFrequency Add RemoveIf PRN, administer for Add Remove Add More MEDICAL HISTORYASSESSMENT NursingList InterventionList OutcomesList Nursing Diagnosis: Risk for Ineffective Tissue Perfusion (Cardiac) Related to increased risk of aortic aneurysm or dissection due to connective tissue weakness. Related to cardiac valve abnormalities, such as mitral valve prolapse or aortic regurgitation, common in Marfan syndrome. Related to potential for arrhythmias due to structural heart changes. Interventions The school nurse will monitor blood pressure regularly to detect any unusual increases that could strain the aorta. The school nurse will educate the student on recognizing early signs of aortic dissection (e.g., sudden chest, back, or abdominal pain) and when to seek immediate help. The school nurse will encourage adherence to any prescribed beta-blockers or angiotensin receptor blockers to reduce aortic strain. The school nurse will collaborate with the healthcare provider for regular echocardiograms or cardiac MRIs to monitor heart and aorta structure. The school nurse will encourage avoidance of strenuous physical activities that could increase blood pressure and strain the heart. Expected Outcomes The student will maintain stable blood pressure within safe limits. The student will demonstrate understanding of aortic dissection warning signs and report symptoms immediately. The student will avoid strenuous activities and report regular follow-ups with a cardiologist. Nursing Diagnosis: Impaired Physical Mobility Related to joint hypermobility and muscle weakness often associated with Marfan syndrome. Related to potential for scoliosis or chest deformities (pectus excavatum or pectus carinatum) that may impact movement and endurance. Related to risk of joint pain or instability due to connective tissue laxity. Interventions The school nurse will collaborate with physical therapy to create a low-impact exercise plan focused on strengthening and stabilizing joints. The school nurse will educate on the importance of avoiding high-impact sports or activities that could overstretch joints and connective tissue. The school nurse will encourage supportive footwear and orthotics, if necessary, to improve stability during movement. The school nurse will encourage assistive devices (e.g., wrist or knee braces), if prescribed, if joint instability limits mobility or causes discomfort. The school nurse will ensure regular assessment of posture and spine health, referring to orthopedic care as needed. Expected Outcomes The student will demonstrate improved mobility and joint stability with adherence to a low-impact exercise plan. The student will avoid high-impact activities and understand the importance of joint protection. The student will experience reduced joint discomfort and greater physical stability. Nursing Diagnosis: Risk for Impaired Skin Integrity Related to thin, fragile skin due to connective tissue abnormalities. Related to increased risk of bruising and injury from minor trauma. Related to potential for delayed wound healing associated with connective tissue disorders. Interventions The school nurse will educate the student on the importance of protecting skin, such as wearing protective clothing during activities. The school nurse will encourage the use of moisturizing lotions to prevent skin dryness and cracking. The school nurse will educate on proper wound care techniques, such as gentle cleansing and the use of non-adherent dressings. The school nurse will monitor for signs of delayed wound healing or infection and encourage prompt medical intervention if needed. The school nurse will advise avoiding harsh soaps or other skin irritants to maintain skin integrity. Expected Outcomes The student will demonstrate knowledge of protective skin care techniques and avoid skin trauma. The student will experience reduced incidence of bruising and skin tears. The student’s wounds will heal promptly, with minimal risk of infection or complications. Nursing Diagnosis: Ineffective Breathing Pattern Related to potential chest deformities, such as pectus excavatum, that can restrict lung expansion. Related to risk of spontaneous pneumothorax due to weakened lung tissue. Related to reduced exercise tolerance due to respiratory limitations. Interventions The school nurse will assess respiratory rate, depth, and effort regularly to monitor for signs of breathing difficulties. The school nurse will educate the student on signs of a pneumothorax (e.g., sudden chest pain, shortness of breath) and the importance of seeking emergency help. The school nurse will encourage deep breathing exercises to improve lung expansion and maintain respiratory health. The school nurse will educate on the importance of routine chest imaging to monitor lung health. The school nurse will promote activities that maintain fitness without excessive strain on the respiratory system, such as swimming or stationary biking. Expected Outcomes The student will maintain a stable and effective breathing pattern with no signs of respiratory distress. The student will recognize symptoms of pneumothorax and seek immediate care if symptoms occur. The student will engage in appropriate physical activities that support respiratory function. Nursing Diagnosis: Disturbed Body Image Related to noticeable physical characteristics such as tall, thin stature, long limbs, and chest wall deformities. Related to possible self-consciousness or social anxiety related to appearance differences from peers. Related to potential low self-esteem due to health limitations and appearance-related challenges. Interventions The school nurse will encourage open discussions with the student about feelings related to their physical appearance and self-esteem. The school nurse will provide resources for counseling or support groups focused on individuals with Marfan syndrome. The school nurse will offer positive reinforcement focused on strengths, talents, and interests unrelated to appearance. The school nurse will educate teachers and classmates, if appropriate, about Marfan syndrome to foster an inclusive environment. The school nurse will suggest ways to manage physical features if desired by the student, such as clothing choices that make them feel comfortable. Expected Outcomes The student will report feeling more positive about their body and demonstrate improved self-acceptance. The student will identify personal strengths and interests that contribute to self-esteem. The student will experience reduced social anxiety and feel supported by peers and school staff. Nursing Diagnosis: Knowledge Deficit Related to lack of understanding about Marfan syndrome’s long-term implications and self-care needs. Related to limited awareness of the importance of regular monitoring for cardiac, orthopedic, and eye health. Related to difficulty recognizing and managing risk factors that could worsen symptoms or lead to complications. Interventions The school nurse will provide information on Marfan syndrome, including signs and symptoms of complications (e.g., aortic dissection, pneumothorax). The school nurse will educate on the importance of regular medical follow-ups, such as eye exams, echocardiograms, and orthopedic assessments. The school nurse will encourage self-monitoring of symptoms and proactive reporting to healthcare providers. The school nurse will offer resources, such as Marfan syndrome support organizations, to increase understanding and access to educational materials. The school nurse will collaborate with school healthcare staff to develop an Individualized Health Plan (IHP) addressing specific needs and emergency protocols. Expected Outcomes The student will demonstrate knowledge of Marfan syndrome management and the importance of follow-up care. The student will recognize and report any concerning symptoms promptly. The student will participate in educational resources, developing confidence in self-care and condition management. Would you like to add another nursing diagnosis? Yes No Nursing DiagnosisNursing DiagnosisAdd your own nursing diagnosisInterventionsAdd your own nursing interventionsExpected OutcomesAdd your own expected outcomesNursing Diagnosis Add RemoveInterventions Add RemoveExpected Outcomes Add Remove Add More EVALUATIONNOTESIHP Developed ByName First Last Title Date Month Day Year Please enter a valid date. Do you want to include physician and parent signature lines? 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