BLOOD DISORDERS

Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. Symptoms include extended bleeding after injury, surgery, trauma, or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. The body produces 13 clotting factors. If any of them are defective or deficient, blood clotting is affected; a mild, moderate or severe bleeding disorder can result. (National Hemophilia Foundation)

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HEMOPHILIA
SICKLE CELL
VON WILLEBRAND DISEASE           
OTHER FACTOR DEFICIENCIES

 

Basics of Bleeding Disorders

Child Care and School

Field Trips and Extracurricular Activities

School (16-25 Years)

Back-to-School Basics

Our Children’s Books (Hemophilia) — various free books

Back-to-School Tips for Parents

Transitioning to Adulthood

 

 

 


Back to School

 

 


HFA:   Students with Bleeding Disorders

 

 


HFA:  My Bleeding Disorder

 

 


HFA:  Sample Section 504 Accommodation Plan

 

 


Reasonable Accommodations

 

 


The School Tool Kit for People with Bleeding Disorders

 

 


R.I.C.E.

 

HEMOPHILIA

National Hemophilia Foundation

KidsHealth: Hemophilia

CDC: Basic Concepts of Hemophilia

Going to School With Hemophilia

HFA:  K-5 Powerpoint

HFA:  6-12 Powerpoint

HFA:  College Checklist

 


Hemophilia Myths & Facts

 

 


Hemophilia and School:  Developing an IHP

 

Sickle cell disease is a group of inherited red blood cell disorders that affects hemoglobin, the protein that carries oxygen through the body. Normally, red blood cells are disc shaped and flexible to move easily through the blood vessels.  For the person with sickle cell disease, the red blood cells are crescent or “sickle” shaped. These cells do not bend and move easily and can block blood flow to the rest of the body.

The blocked blood flow through the body can lead to serious problems, including stroke, eye problems, infections and episodes of pain, called pain crises.   (NIH)

 

SICKLE CELL

NIH: What is Sickle Cell Disease?

CDC: Sickle Cell Trait Toolkit

SickleCellDisease.org: What is Sickle Cell Disease

SickleCellDisease.org: What is Sickle Cell Trait

TeensHealth: Sickle Cell Disease

KidsHealth: Sickle Cell Disease

MedlinePlus.gov: Sickle Cell Disease

NCAA: Sickle Cell Trait

CDC: Taking Charge of Your Health and Healthcare (Teens transitioning to adulthood)

 

 


SCD – Your Questions Answered

 

 


Sickle Cell Trait

 

 


Sickle Cell Anemia

 

 

Sickle Cell Disease VideoSickle Cell Disease

 

 

SICKLE CELL IN THE SCHOOL SETTING

KidsHealth: 504 Plans

 


Sickle Cell:  School Nurse Presentation

 

 


Tipsheet:  Supporting Students with Sickle Cell Disease

 

 


Sickle Cell:  Educators Guide

 

 


Sickle Cell:  A Resource for the School Nurse and Educator

 

 


School Handbook:  The Sickle Cell Child

 

 


Sickle Cell School Modifications

 

 


Sickle Cell Disease:  Keys for Staying in School

 

 

SICKLE CELL IN THE SPORTS SETTING

 

Sickle Cell Trait and the School Athlete – I

 

Sickle Cell Trait and the School Athlete – II

 


Sickle Cell Trait and Athletes

 

 


Sickle Cell Trait:  A Fact Sheet for Student Athletes

 

 


Sickle Cell Trait:  A Fact Sheet for Coaches

 

 

VON WILLEBRAND DISEASE

In Brief: Your Guide to von Willebrand Disease

KidsHealth.org: von Willebrand Disease

All About Bleeding: von Willebrand Disease

von Willebrand Disease

 

OTHER FACTOR DEFICIENCIES

Hemophilia.org: Other Factor Deficiencies

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